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Old 03-21-2013, 07:25 PM   #1
dchips1
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Join Date: May 2006
Location: Mesa, Az
Posts: 219
I got my first IT Herceptin today!!

All went well, still feeling ok. Oh it was just a wee dose but will stay small for 3 weeks then go to more every week. hope fully enough to get rid of the t-8 met!!! Yeah God. Talking about changing xeloda to Navelbine? I think I will stick with the tykerb though, it seems to have kept my brain clear. Got a call last Thursday about 45 min after my brain MRI to go straight to Barrows Neuro hospital, they had an ICU bed waiting for me???? Turns out the MRI tech saw the swelling around the ommaya and fluid and got it stat read, and that was 4 days in hospital, my brain and ommaya didn't like each other, caused swelling and luckily no other complications other than steroids, port is good and in the right place.

this was the first infusion of Herceptin IT in Arizona at 1509 AZ time today... Thanks to all who are here and have been over all these years. for research, laughs, cries, suggestions, and some fears, joys over milestones and loving others.

Darita prayers and peace to all Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain

1/29/14 HIHO HIHO its off to Neuro surgery I go





Life is Good when you wake up in the morning and take a breath and know that God has given me another day.


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