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Old 02-27-2013, 04:33 PM   #17
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: Having scanxiety and have to vent.

Joan, thanks for sharing your story. I see you had all that done in 2008? Congratulations on your good news. I couldn't have my met removed, as it was too close to the brain stem, too deep. Plus they didn't want to mess with my vision, as I lost some of it already.

To all of you, thanks for the friendly remarks. I love reading what you all have to say. xoxoxo
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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