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Re: Neropathy
Linn,
Sorry you're so worried. You've already been given a lot of good advice but I feel like I want to join in anyway.
If you'll notice in my signature...I HAVE brain mets.
I had no symptoms at all.
A brain MRI is easier than either chemo or radiation...and ruling things out is ALWAYS a good idea.
And, an MRI doesn't expose you to any radiation at all.
In fact, with your positive nodes and the size of your tumor...
my counsel to you at the end of radiation would have been to fake some kind of symptoms in order to GET a brain MRI.
If I hadn't insisted on a brain MRI...I might be in pretty bad shape by now...maybe even dead...remember I had ABSOLUTELY no symptoms.
I guess what I'm saying is this...
1) I don't think you have brain mets
2) The tingling is probably just what you think...neuropathy from the T...mine didn't show up till later either
3) Wouldn't it be safer to know for sure? That's a big chance to take!
4) If you don't get the brain MRI now...think about getting one at the end of Herceptin, even if you have to lie to get it
Best to you,
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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