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HELPx2
Hello ladies,
I am seeking counseling from anyone who's had radiation treatment 2 times. Please see my other post titled "Help" for more insight.
Since my second recurence last week....things have been a total blur. Yesterday I broke down and really cried. My oncologist sent me to go see my radioOnc just to be sure nothing can be done in that department. She said I would not qualify for surgery or radiation since I did not qualify for surgery last year when I had a recurrence. And since I already had maximum dosage of RAD, i probably would not qualify either due to side effects and dangers...well guess what? HE SAID he was recommending that I get the same amount of radiation for 5 weeks!!! For some reason, that didnt sit well with me....doesnt even sound right...I am scared, confused, and worried.
He is also saying that the best way to administer the radiation is to deliver it 2 times a day at 6 hours apart!!! I do not live close to this hospital at all and I would have to leave my teaching job. I feel so overwhelmed BC I have bills to pay...and worried about my future...what if it triggers second cancer!?! Or worse more scarring to my heart and lungs? ;(
Anyone with radiation experience??? Lost and confused more than ever!
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Feb/2010-Diagnosed with IDC ER+, PR+, Her2+++(age 28)
Mar 2010- 6 Rounds of FECT (made me sick as a dog)
Jun 2010- Finished chemo
Jul 2010- Mastectomy +12 lymphs (4+)
Oct 2010- Radiation/Begin Herceptin (Her2 was overlooked by my Onco!)
Sep 2011- End of Herceptin
Nov 2011- Recurrence-->Chest Wall, muscle, and possible lymph (ER+, PR-, Her2+++)...WTF!!!???!!!
Feb 2012-Randomized for Clinical Trial
Feb 2012- Begin blind study either TDM1 w/Pertuzumab or TDM1 w/Placebo Pertuzumab
Jan 2013-2nd Recurrence, off TDM1...what next?
Feb 2013-chest wall resection
Feb 2013-Begin Zoladex :(
Apr 2013-Begin Femara
Jul 2013-Oopherectomy + both tubes
Oct 2013-Chest wall recurrence same spot...Dr monitor
Nov 2013-New nodule on chest...restaging...bone/ct clear...continue to monitor
Mar 2014-Surgeon fr/dif hospital confirms lung metasis based on review of CT scan from Nov...Onc recommends Aromasin/Affinitor...
Apr 2014-Start Herceptin+Vinorelbine
Sep 2014-New pain in lower back, MRI confirms metastasis
Oct 2014-SBRT to lungs
Nov 2014-SBRT to lower back
Dec 2014-Restaging confirms two new nodules to lungs and lower spine :(
Jan 2015-Xeloda and Tykerb (good response)
Aug 2015-Xeloda/Tykerb not working...Dr wants to try Taxol/Herceptin combo...problem, Herceptin not covered by OHIP
Sep 2015-Begin Taxol continue Xgeva
Oct 2015-Add Herceptin
Nov 2015-CT stable but MRI shows new mets to spine :(
Jan/Feb 2016-Start Erubulin (Halavan)
May 2016-Progression...Stop Erubulin
June 2016-PMH to explore Clinical Trial options...consideration for Immunotherapy
July 2016-Screening for Trial...Still without treatment, experiencing low appetite, low energy, pain, and rapid wieght loss...cachexia???
You never know how STRONG you really are...until being strong is the only CHOICE you have...
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