HER2 Support Group Forums - View Single Post - UPDATE...PET CT today

cheery · 01-10-2013, 09:54 PM

Chrisy

You've been a source of inspiration for me since I came on board and I've been following your posts quietly encouraged by your perseverance.

Navelbine was my first chemo for liver met at diagnosis and it gave me 4 years of NED. When the liver met came back recently, we did Navelbine again and it kept my liver met stable. But this 2nd round of Navelbine gave me lots of shooting pains in the hip and liver area. I didn't experience any pain whatsoever on my 1st round of Navelbine at diagnosis. I'd seen 2 oncologists to say that Navelbine is known to cause pain at tumour sites. So why the difference in pain experiences for both rounds? No one could explain..

Navelbine is very doable with constipation and low WBC. Other than that, my QOL was excellent.

Hope this helps and sending you positive thoughts and prayers.

01-10-2013, 09:54 PM	#11
cheery Senior Member Join Date: Apr 2011 Posts: 44	Re: PET CT today - ball of confusion! Chrisy You've been a source of inspiration for me since I came on board and I've been following your posts quietly encouraged by your perseverance. Navelbine was my first chemo for liver met at diagnosis and it gave me 4 years of NED. When the liver met came back recently, we did Navelbine again and it kept my liver met stable. But this 2nd round of Navelbine gave me lots of shooting pains in the hip and liver area. I didn't experience any pain whatsoever on my 1st round of Navelbine at diagnosis. I'd seen 2 oncologists to say that Navelbine is known to cause pain at tumour sites. So why the difference in pain experiences for both rounds? No one could explain.. Navelbine is very doable with constipation and low WBC. Other than that, my QOL was excellent. Hope this helps and sending you positive thoughts and prayers.