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Old 01-06-2013, 09:02 AM   #4
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: For those who've had liver ablation - pain?

Oh Penny I feel terrible for you. I always hope I will be the only one and that others will do better. Yes I had pain. The 2 first days I had a pump in my spine (how do you call that in English?) then they took it out. I had pain for about 5 days and my stomach was so bloated I looked pregnant. I had pain from the bloating and pain going up my back to the shoulder blade and the worst Gerd you can imagine. I had RFA and resection during the same operation and they also took the gallbladder out. Did they take yours out? My sense of smell went crazy for 2 days. I could smell absolutely everything. I know what it is to be a dog now! I did not like that at all. For the bloating they told me the only thing to do was to walk. So as difficult as it was I would walk every hour. But everything got better day after day so ask your doctors to help you. Don't stay with pain. It is difficult to find the perfect morphine dosage because of nausea but you can feel it and ask them for anti nausea medication to help. Stay strong. Every hour is a victory and you are going to be better and better. You did the hardest part Penny! I hate to know you are in pain. Hugs. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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