Thread: Help please
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Old 01-04-2013, 01:48 PM   #6
KsGal
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Join Date: Dec 2011
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Re: Help please

I think that was me. I was having the all over pain. I do get mine mixed now with sterile water instead of the mixture with the preservative, and honestly the pains did stop. My ankles, my knees, my legs, everything just ached all the time. I had to talk to the nurse on the chemo team that mixed mine, talking to the doctor himself didn't seem to help me for whatever reason. My doctor thought it came premixed, but it doesn't. Talk to your infusion team. It can't hurt to try it, and it honestly did help me. Some of us must just be ontolerant to the preservative they use.
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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