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Old 12-28-2012, 03:43 PM   #3
Rolepaul
Senior Member
 
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 391
Re: Brain mets discussion- Please share your thoughts

I recommend once per year to 18 months for an MRI of the brain for the first five years. After five years, it seems that the brain is unlikely to be a location for the cancer to reside in, so maybe every three years to five years. If you get headaches, dizziness, etc. then it should be done immediately. If there is more than 5 sentinal nodes definitely do this. That assumes cancer-free elsewhere.

There are going to be two articles in journals shortly discussing IT Herceptin. That may help with this form of treatment. Doctors are very risk adverse and many will go with standard treatments, such as focused beam rads when lesions appear or methotrexate IT or WBR. There appears to be increasing evidence that the high dose IT Herceptin is a better alternative, but it is hard to get traction. MD Anderson in Houston is starting to gather more patients to get the evidence together, but I can tell you it is still not yet known by many physicians. Have your treatment specialist call Dr. Monica Loghin at MD Anderson Cancer Center in Houston Texas to get additional information. I am trying to get som public forums to get the word out. We shall see how succesful I am.
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