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Re: Brain mets discussion- Please share your thoughts
Well, I am probably the least expert on this subject, but Im considering my recent experience...Im putting in my two cents! I think anyone who is her2 positive with mets should have brain scans included with their regular scans every three months. It should just be protocol. Paul did share his wife's positive experience with the herceptin intrathecal, I believe, but it's awfully hard where I live to find anyone that would be willing to do that as it is still considered experimental. When I mentioned the intrathecal herceptin many months ago before this even happened to me, my doctor wasn't even aware.
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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