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Re: Disappointed, frustrated, sad, scared and a lil angry...
Hi Jessica,
Getting a couple of treatments in before the holidays and then continuing might be doable. I would ask the radiation oncologist who has been treating you since 2008 and is now back on your team what her opinion might be. I hear you about having a normal holiday. I have told my team I will have scans after I get back from St. John. My thoughts are with you and I wanted to thank you for reaching out to me when I was first diagnosed. Peace to you, Jessica. You have provided so much support to the women here, perhaps more than you may realize. You are an amazing young woman.
Take good care,
Jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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