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Re: TDM1 is bust for me
Thanks for the thoughts and options.
I have had preliminary assays done which were not especially helpful. I live in Australia so there can be some issues with tissue getting to the US safely and intact - live tissue if required may be difficult. I am investigating my options.
My intuition has always told me that I need a multiple pathway blockade - but how is this sustained long term?
My Onc said I have lots of options yet though to get such a poor result from the supposed best drug available is just a kick in the guts.
We are also considering the german clinics but I can't imagine being away on the other side of the world from my babies however I was born in the Black Forrest and there is something strangely attractive about a "rebirth" there.
I am here drinking my anti cancer smoothie - I will not give up on my path to becoming and staying well. Maybe Sheila will help to guide me.
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Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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