I need to amend my post; I was "protected" against the ER after my treatments for early stage because I was taking Tamoxifen, but I think I wasn't metabolizing it or it fueled the Her2 back up or a combination of the two.
The suggestions of getting the tumor tested sound good and getting a second opinion. What about a phone consultation with Dr. Slamon?
You have been doing alot of good things lifestylewise. Do you use any lotions or sunscreen that have chemicals? A great website is the environmental working group at
www.ewg.org. Input your cosmetics or creams and they have assessed the ingredients. So many things that we're exposed to could be hormone disrupting; car exhaust, costmetics, and sometimes we need to be as careful about what we put on our bodies as what we put in. I used to use Lubriderm everyday, not anymore.
Maybe something else is the driver. How is your bloodwork? Is anything out of sorts that shows such as diabetes? Metformin is also used in clinical trials for breast cancer. Maybe there's some truth to the thought that cancer and diabetes have the same metabolic pathway; my mother was an insulin-dependent diabetic. Do you have diabetes in your family or did you have gestationel diabetes when you had your children? Do you have your glucose tested?
Amanda, I am sorry about this news. I have hope that you will find something very soon to help you.