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Old 11-26-2012, 12:06 PM   #34
mamacze
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Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
Re: Perjeta failed, changing horses again

Hi Crisy,
Aaack, I feel sick at heart for you - especially when TDM worked so well. I am happy you are able to stand right back up and give it an upper cut. God willing, Navelbine will be the charm. (it did work for me and others). But I have to say that I hate the "try this and if it doesn't work, try that" approach. See my earlier thread on genetic tumor profiling. I wonder if it would help you? I recently had my tumor profiled, they identified a genetic mutation and a drug that has had promising results with it. If you are interested, send me a PM and I will get you the relevant information.
Hang in there angel. Stay strong.
Love and Hugs,
Kim (from CT)
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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