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Cathya · 11-24-2012, 04:52 PM

I guess I should be more specific. I believe that her2+ bc likes to travel. When I first saw my oncologist he thought that I didn't need chemo. My tumor was 3 cm and I was very uncomfortable with this but was in the middle of trying to express this when he found the second tumor in my supraclavicular node upon physical examination...so all changed then in any case. However, I was node negative and asked to be tested for her2 as it was not standard at that time...positive. My point is that my cancer spread in an unusual way and I credit being her2+ to that. I would seek the most aggressive treatment for your cancer as this is your best opportunity to get a cure. Chemo to me is actually easier than radiation and herception is a breeze....lol. Of course I am kidding but you get the picture. You will survive and hopefully for the very, very long term.

My best regards,

Cathy

11-24-2012, 04:52 PM	#6
Cathya Senior Member Join Date: Sep 2005 Location: Ontario, Canada Posts: 752	Re: Lobular Invasive HER2NEU positive I guess I should be more specific. I believe that her2+ bc likes to travel. When I first saw my oncologist he thought that I didn't need chemo. My tumor was 3 cm and I was very uncomfortable with this but was in the middle of trying to express this when he found the second tumor in my supraclavicular node upon physical examination...so all changed then in any case. However, I was node negative and asked to be tested for her2 as it was not standard at that time...positive. My point is that my cancer spread in an unusual way and I credit being her2+ to that. I would seek the most aggressive treatment for your cancer as this is your best opportunity to get a cure. Chemo to me is actually easier than radiation and herception is a breeze....lol. Of course I am kidding but you get the picture. You will survive and hopefully for the very, very long term. My best regards, Cathy __________________ Cathy Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004 Diagnosed Jan. 2005 tumor in supraclavicular node Stage 3c, Grade 3, ER/PR+, Her2++ 4 AC, 4 Taxol, Radiation, Arimidex, Actonel Herceptin for 9 months until Muga dropped and heart enlarged Restarting herceptin weekly after 4 months off Stopped herceptin after four weekly treatments....score dropped to 41 Finished 6 years Arimidex May 2015 diagnosed with ovarian cancer Stage 1C started 6 treatments of carboplatin/taxol Genetic testing show BRCA1 VUS Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian April 20, 2018 BC mets confirmed, ER/PR+ now Her2- Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these. To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018. Genetic testing of ovarian tumour and this new lung met will take months. To see geneticist to be retested for BRCA this week....still BRCA VUS CA125 has declined from 359 to 12 as of Aug.23/18