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Jackie07 · 10-17-2012, 06:01 PM

Hi Jaykay,

My BC journey is very similar to yours. My recurrence was also more than 2 cm and I had two lymph nodes involvement. I was treated with TCH and then weekly Hercetin. Because of a congenital heart condition and previous anthracycline treatment, I was only able to get 4 weekly Herceptin after 18 weeks of TCH, far short of the now standard 33 weeks (11 treatment every 3 weeks)

But I've been doing well. No recurrence, no problems for the past five years. Even the lyphedema (caused by a bout of cellulitis from bug bites in the back yard while picking figs) has improved to the point that I'm not wearing my new sleeve and glove while typing this. So hang in there. The treatment is doable. Eat well and sleep well plus daily exercise (30 minutes walk does wonders - it increases the release of endorphine which improves our immune system besides making us happy.)

Yes, there will be times you will feel so tired and so frustrated. But you will get through it. [Some of us even 'worked' through chemo...]

Sending you good vibes.

10-17-2012, 06:01 PM	#10
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Recurrence after 12 years Hi Jaykay, My BC journey is very similar to yours. My recurrence was also more than 2 cm and I had two lymph nodes involvement. I was treated with TCH and then weekly Hercetin. Because of a congenital heart condition and previous anthracycline treatment, I was only able to get 4 weekly Herceptin after 18 weeks of TCH, far short of the now standard 33 weeks (11 treatment every 3 weeks) But I've been doing well. No recurrence, no problems for the past five years. Even the lyphedema (caused by a bout of cellulitis from bug bites in the back yard while picking figs) has improved to the point that I'm not wearing my new sleeve and glove while typing this. So hang in there. The treatment is doable. Eat well and sleep well plus daily exercise (30 minutes walk does wonders - it increases the release of endorphine which improves our immune system besides making us happy.) Yes, there will be times you will feel so tired and so frustrated. But you will get through it. [Some of us even 'worked' through chemo...] Sending you good vibes. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 10-17-2012 at 06:05 PM..