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Old 10-17-2012, 01:01 PM   #2
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Re: Recurrence after 12 years

Hey Jaykay,
What an unexpected and unwanted shocker. But I like your attitude - anyone who uses wtf in the same sentence with lump on breast is ok in my book. I usually shout it out, myself. WTF. I also had a big shock, going from stage 0 to stage IV! Talk about wtf.

If you've been researching her2, even here, you should know that while it is fast growing and aggressive (hence the 2.3 cm out of nowhere), the game has changed completely for Her2 positive cancer, it is now considered a more "favorable" prognosis. Since you are "chemo naive", you have a great chance of responding very well to treatment as the cancer has never seen the kind of weaponry you will be bringing to the fight.

One question, do they know for sure his is a recurrence vs. a second cancer? Not that it makes any diff in your current treatment path, but it is a question.

I know this must be a crushing blow for you. Try to at keep in mind that you are (still) dealing with an early stage cancer which is very treatable. More and more I also hear the "c" word used in connection with early her 2 disease, so why not expect that to happen for you. Having been in mostly targeted therapies for a longtime, I have become quite Whitney about the chemo side effects I am now experiencing. BUT when I had my initial chemo TCH I had zero bothersome s/e. dont claim the side effects until/unless you actually get them!

Sorry you had to come out of the closet, so to speak, but you already know we are all here to support and encourage you.

Take care
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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