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Old 10-10-2012, 02:03 PM   #19
Paula O
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Join Date: Jul 2011
Posts: 954
Re: more transition for me

Dear Pam,

I wish you weren't going through these hard challenges with your health and I imagine the move was a tough decision. If I lived nearby I'd love to come by with flowers from my garden and home cooking and a nice cheerin' uppin' visit and get to know you better. You seem like a very nice person.

I hope you don't mind--I'm not "telling you what to do" but going to brainstorm a bit with you with some ideas for you to take or leave--maybe there's a suggestion that possibly you can use.

Have family members/close friends gotten out the word that you'd love visitors (if you would)? Sometimes a few phone calls will get the ball rolling for people stopping by for a visit.

I echo what many have already said: can you look into insurance coverage for a PT and perhaps an OT coming to you? Surely your doctor can perscribe that for whereever you are.

Meanwhile, what do you think of setting some reasonable WRITTEN short term and long term goals for yourself (physically, personal growth and development, and beyond) and tracking progress?

One possible idea for starters in getting stronger while you are waiting for a PT Rx from your doc would to be to go on line and see what kinds of PT you can do on your own in bed and in your chair without assistence--starting slowly right wherever you are at and making progress from there.. Some PT tutorials come complete with video demonstrations. Even a few minutes several times a day can make a real difference.

What do you like to do for fun that fits with your present physical limitations? There are on-line courses, tons of cool stuff on the internet to learn...Are you a reader? Do you have music going? The window open for a breeze and to listen to the birds and a wind chime your family puts out there if you like that sound before winter hits in MN? Is there a spot for a bird feeder/flower pot you can see outside your window? Do you have the things you enjoy most from home within reach and view?

Is there a spot you can be wheeled outside for some fresh air and sunshine for awhile every day...maybe bring a good book and your phone (to chat and be able to get ahold of staff to come back and get you when you're ready) or invite a new friend to go with you? Is there a meeting place where people gather?

All us Her2 positive sisters care about you, Pam. (((Big hugs from all of us who are huggers to you))). Take courage, friend.

Paula
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