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Old 10-03-2012, 07:34 PM   #10
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Re: How do you live well?

Amanda;

I have been thinking about your post and wondering if and how to respond. I have basically not changed much since my diagnosis.....except that I am now not working. I feel so liberated as the incredible stress and fatigue I felt as a single parent with two children working in a job I didn't particularly like but was unable to leave is now lifted. I need to lose some weight, thought I should give up meat but haven't, drink wine when I feel like it, don't exercise enough but keep walking but I feel happy. My immediate family lives close by and we get together often and I enjoy them, I take care of my parents who are both in their 90's, love my children and feel their love for me and we laugh an awful lot. I can't afford nice holidays and would love to go to California yearly to meet the her2support group but really can't. I hate, hate, hate hearing about our sisters who pass and remember them all and reading their posts and how much each one gave to this site....then I remember how little I have given as I do find it hard to find words and feel badly again. However, even with this I keep coming back and feel the wonderful support of this group particularly when I do look into the future. I don't go to church and don't pray, even when I think I really should. I love reading....everything....scientific discoveries, astronomy, mysteries...you name it.

Amanda, I live each day and try to focus only on today. I might look forward to Thanksgiving or Christmas this year but not much further. It isn't really the cancer worry. I've always been someone who shouldn't look into the future, especially without someone very positive beside me. But in each day I am a happy person. I love you all and feel blessed to have found this site.

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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