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MJsHusband · 09-25-2012, 07:36 PM

Joanne,
Thanks for your kind words. MJ does not like to visit these sites so I'm kind of on here for her to find out more information. When we first found out her breast cancer had spread to her endometrial region, I couldn't find anyone who had that happen. The research I did showed that it is very rare. It was kind of frustrating. The even wrongly diagnosed her with endometrial cancer in the beginning because it doesn't happen that often. After testing, they proved it to be mets from the original her2. She has inflammatory bc so it spreads very fast. When they thought it was endometrial cancer, they staged it at III2c, despite clear scans 3 months prior to that.
I'm sorry to read about what you are going through. It's all very scary. In fact, MJ had her 3-month PET/CT scans on Monday, Sept. 17. They called and left a voice mail on her cell the next day. She couldn't find the courage to listen to the message all week or weekend. She had surgery to have her right breast lifted to match her mastectomy breast yesterday. Somehow, between her grogginess from the general anesthesia and the Oxycontin, she was finally in a state of mind to listen to her voicemail. It was great news that she is NED. Believe me, I have so much anxiety in all of this as well. It's rough. Hang in there and keep positive thoughts.

~Greg

09-25-2012, 07:36 PM	#7
MJsHusband Senior Member Join Date: Apr 2012 Posts: 87	Re: Breast Cancer Spread to Uterus Joanne, Thanks for your kind words. MJ does not like to visit these sites so I'm kind of on here for her to find out more information. When we first found out her breast cancer had spread to her endometrial region, I couldn't find anyone who had that happen. The research I did showed that it is very rare. It was kind of frustrating. The even wrongly diagnosed her with endometrial cancer in the beginning because it doesn't happen that often. After testing, they proved it to be mets from the original her2. She has inflammatory bc so it spreads very fast. When they thought it was endometrial cancer, they staged it at III2c, despite clear scans 3 months prior to that. I'm sorry to read about what you are going through. It's all very scary. In fact, MJ had her 3-month PET/CT scans on Monday, Sept. 17. They called and left a voice mail on her cell the next day. She couldn't find the courage to listen to the message all week or weekend. She had surgery to have her right breast lifted to match her mastectomy breast yesterday. Somehow, between her grogginess from the general anesthesia and the Oxycontin, she was finally in a state of mind to listen to her voicemail. It was great news that she is NED. Believe me, I have so much anxiety in all of this as well. It's rough. Hang in there and keep positive thoughts. ~Greg __________________ 08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43. 08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx [10/10 ~ Scans show liver lesions are gone. NED! 11/10 ~ Ended chemo. Herceptin-only tx 01/11 ~ Mastectomy 03/11 ~ Radiation 07/11 ~ Reconstructive surgery 10/11 ~ PET/CT shows NED :) 01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c 02/12 ~Hysterectomy(all tumors removed). Back to NED. 02/12 ~ Final Herceptin treatment. 03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer. 03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx. 03/12 ~ CT scan shows NED. :) 04/12/~ Began Tykerb/Xeloda. 06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED. 09/12 ~ PET/CT scans show NED. : ) 04/13 ~ Rash on original breast biopsied as cancer. 05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb. 06/13 ~ PET/CT scans show NED : ) 11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx. 02/14 ~ CT scan shows NED. :)