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Re: Anxiously Waiting
So much for 24 to 48 hours! We were told last Tuesday that thats how long it would take to get the papers signed. After several calls Monday and Tuesday I recieved a call late yesterday saying the papers were hand delivered to someone in Charlotte and we should hear something by the end of the week. You have to wonder if it was their husband or wife if it would take a week to get the papers signed. So here we are again anxiously waiting to hear when Barb can go get her first TDM-1 treatment. Its all been approved we just cant seem to get it here fast enough. I was told a long time ago that praying for patience can have painful consequences but I sooooo need some right now.
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Diag. Aug. 2010
ER- PR- Her-2 +++ Stage IV
Mets to T 6th Vertabrae
Radiation to spine
10/23/10StartNavelbine
11/19/10 Port installed
11/22/10 Started 2nd cycle
1/10/11 Finished 2nd cycle
1/24/11 Herceptin Only
3/7/11 progression, start Taxol/Herceptin
4/18/11 Skin mets appear increase treatments to weekly
rash spreads to right breast
7/5/11 enroll in TDM-1 study
7/29/11 randomly assigned Tykerb drop out of trial and start Tykerb /Herceptin no Xeloda skin mets gone Tykerb working
1/31/12 Skin mets return add Xeloda
5/9/12 Stop Tykerb skin mets back
5/17/12 Return to Navelbine/Herceptin
6/26/12 start process for TDM-1 compassionate access
8/28/12 Start TDM-1
10/9/12 third TDM-1 no response yet
10/23/12 Start Haloven
1/17/12 Start Perjeta/ Herceptin/Taxotere
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