HER2 Support Group Forums - View Single Post - Every three weeks or every week for Herceptin

Lauriesh · 08-18-2012, 01:35 PM

I agree with Lani about asking to have the herceptin mixed without the benzoyl alcohol. I did that the last few times and it has made a tremendous difference in the amount of joint pain I get.
They just said I had to get in on a day that another person was getting it, which has never been a problem.
What is also interesting is that my urine doesn't smell anymore. I hated the smell the first couple of times I went after getting herceptin. It must be the alcohol that was causing the smell because that is gone also.

Laurie

08-18-2012, 01:35 PM	#5
Lauriesh Senior Member Join Date: Oct 2005 Location: Lakeville, Minnesota Posts: 199	Re: Every three weeks or every week for Herceptin I agree with Lani about asking to have the herceptin mixed without the benzoyl alcohol. I did that the last few times and it has made a tremendous difference in the amount of joint pain I get. They just said I had to get in on a day that another person was getting it, which has never been a problem. What is also interesting is that my urine doesn't smell anymore. I hated the smell the first couple of times I went after getting herceptin. It must be the alcohol that was causing the smell because that is gone also. Laurie __________________ diagnosed stage 2- 3/2005 4.5 cm & 2+ nodes , er/pr- & HER2+ 4 AC 12 taxol/Herceptin Year of Herceptin liver mets- July-2010 7 taxotere/Herceptin RFA- Feb.2011 NED U of Wa vaccine trial-oct 2011-Feb 2012 Herceptin/tykerb Ned - 2 1/2 years Herceptin & perjeta Ned 3 years Herceptin- reducing treatments , due to s/e, to 5-6 a year NED- 3 1/2 years Ned - 4 years 2/15- stopped herceptin - on no treatment