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sarah · 08-13-2012, 04:31 AM

personally I'd push for Herceptin. in 1999, I asked about getting Herceptin - I had DCIS- cancer only in the breast no node involvement. they said no not unless I was metatastic so.... nearly 5 years later I was metatastic! I believe everyone who is HER2+ should get some amount of Herceptin. Why risk it??? Herceptin is easily tolerated. I've had far more problems and side effects from radiation (heart, lung, etc), chemo (skin, fatigue, etc), femara (bone loss, etc.) than from Herceptin. Actually can't think of one side effect I've had from it. So personally I would yell and scream until they gave me Herceptin but that's me and my experience. Do more, not less. Don't let this mother out of the box! Why risk it? You might be lucky but...
good luck
health and happiness
sarah

08-13-2012, 04:31 AM	#8
sarah Senior Member Join Date: Sep 2005 Location: france Posts: 1,648	Re: HER2+ and no Herceptin Treatment personally I'd push for Herceptin. in 1999, I asked about getting Herceptin - I had DCIS- cancer only in the breast no node involvement. they said no not unless I was metatastic so.... nearly 5 years later I was metatastic! I believe everyone who is HER2+ should get some amount of Herceptin. Why risk it??? Herceptin is easily tolerated. I've had far more problems and side effects from radiation (heart, lung, etc), chemo (skin, fatigue, etc), femara (bone loss, etc.) than from Herceptin. Actually can't think of one side effect I've had from it. So personally I would yell and scream until they gave me Herceptin but that's me and my experience. Do more, not less. Don't let this mother out of the box! Why risk it? You might be lucky but... good luck health and happiness sarah __________________