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rhondalea · 08-11-2012, 08:27 AM

I started setting up a survey on Survey Monkey. Then I decided it would be more productive if we opened an account together. That way, everyone can log in to the account and look at the data. Survey Monkey has tools for this, because there is more than one way to look at such information.

I did this after some furious googling for what Nancy was asking. Studies have been done as to hormone receptors but there's nothing I could specifically for HER2 status.

Then, yesterday, my RSS feed from Science Daily produced this:

http://www.sciencedaily.com/releases...0808093443.htm

In Marin County, at least, it appears that nature trumps nurture. I have a couple of the wonky Vitamin D receptor genes, so I'm supposing that living in NJ most of my life is not the reason I have BC.

This whole post is backwards, but it's the second time I've written it. Last night, I lost the whole thing when I tried to get the Science Daily link.

Anyway, we need a user name and a password. I'll set up a new email address for us to use, and I'll post it here.

If there's any data that we want to include besides type of cancer and geographical location, let me know, and I'll add it in.

Rhonda

08-11-2012, 08:27 AM	#9
rhondalea Senior Member Join Date: Jun 2011 Location: Somerset, NJ Posts: 487	Re: Stats on Her2 group, I started setting up a survey on Survey Monkey. Then I decided it would be more productive if we opened an account together. That way, everyone can log in to the account and look at the data. Survey Monkey has tools for this, because there is more than one way to look at such information. I did this after some furious googling for what Nancy was asking. Studies have been done as to hormone receptors but there's nothing I could specifically for HER2 status. Then, yesterday, my RSS feed from Science Daily produced this: http://www.sciencedaily.com/releases...0808093443.htm In Marin County, at least, it appears that nature trumps nurture. I have a couple of the wonky Vitamin D receptor genes, so I'm supposing that living in NJ most of my life is not the reason I have BC. This whole post is backwards, but it's the second time I've written it. Last night, I lost the whole thing when I tried to get the Science Daily link. Anyway, we need a user name and a password. I'll set up a new email address for us to use, and I'll post it here. If there's any data that we want to include besides type of cancer and geographical location, let me know, and I'll add it in. Rhonda __________________ 2/6/09 Core needle biopsy: negative; Mammos through 2010: no change 3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much 4/14/11 Core needle biopsy: negative for cancer 5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5 6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3 7/14/11 CT/Bone scans NED; MUGA 66% 7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11 9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64% 9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012 12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy! 2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17 5/16/12 Start five-years Metformin trial 6/19/12 MUGA 61% 8/21/12 Brain MRI NED (head still hurts, brain still fogged) 9/4/12 Herceptin done! 9/6/12 Port out! 7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013 5/2014 Add Namenda 7mg 9/2014 Stop Aricept and Namenda; Neuropsychological evaluation 10/24/14 Start cognitive rehabilitation therapy