View Single Post
Old 07-05-2012, 06:51 PM   #14
rhondalea
Senior Member
 
rhondalea's Avatar
 
Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
Re: Drug for chemo brain

Andi, I wish your oncologist were my oncologist. I had to figure it all out on my own. I subscribe to two professional databases (Natural Medicines Comprehensive Database and Natural Standard), but I don't really have the necessary background to understand the science, so it's a lot of work.

Idelle, I am happy to tell you anything you want to know. ("More than you want to know" is more likely--the one symptom that hasn't abated is the babbling. Mostly I'm quiet, but as soon as I get started, I.just.can't.shut.up.) Although I haven't finished your book (I'm really behind, but I now believe that I can get caught up), just the bits I was able to read when I was truly addled were a huge help to me.

I started out using only a couple of trusted brands; specifically, Jarrow, Doctor's Best and Source Naturals. (For herbs, my brand of choice is Nature's Way.) I've also tried some of the ridiculously expensive specialty brands just to see if they lived up to the hype implied in their cost. All that was a while ago. More recently, I decided to give Swanson Vitamins and Vitacost a whirl. (My husband doesn't complain--I don't shop for much else--but I was spending an exorbitant sum on supplements.)

If results are the standard, the quality of both Swanson and Vitacost are comparable to the name brand supplement manufacturers. Currently, most of the "brain supplements" I use come from Vitacost.

My oncologist has never recommended a supplement to me. Not her thing, but it's possible that may change--her nurse called me a few weeks ago to ask what supplement I took during chemo to prevent neuropathy (because I never had a single tingle). Perhaps it's the beginning of a trend.
__________________

2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
rhondalea is offline   Reply With Quote