HER2 Support Group Forums - View Single Post - Myelodysplastic Syndrome

jml · 06-23-2012, 03:31 PM

Hi Alice & All~
Good news! My ANC (total white count?) came up high enough for me to resume chemo last week. It felt weird to be happy to starting back on chemo, but I genuinely am.My Hgb is still hanging in there@ 10's & my neutrophils are still low. I was off a full 3 weeks off chemo and it took about 2 & half weeks to feel more energy, and so far, one week back on treatment feeling pretty good.

I have a brain MRI next Thursday, then a full body PET the following week. This will be my first brain MRI in 3.5 mos and the PET will be the 1st since starting Methotrexate/Cytoxan last January, yep 6 months ago. We had anecdotal evidence that it was working but didn't scan bc we knew we didn't have treatment options left. But now that Pertuzumab is on the market, we'll have at least one option to turn to, if needed. But keeping fingers crossed that Methotrexate/Cytoxan continue to work for a long, long time.

Thanks for checking one me~
Always keeping the faith!

Jessica

06-23-2012, 03:31 PM	#20
jml Senior Member Join Date: Dec 2006 Posts: 415	Re: Myelodysplastic Syndrome - Robin Roberts...now I'm feeling nervous Hi Alice & All~ Good news! My ANC (total white count?) came up high enough for me to resume chemo last week. It felt weird to be happy to starting back on chemo, but I genuinely am.My Hgb is still hanging in there@ 10's & my neutrophils are still low. I was off a full 3 weeks off chemo and it took about 2 & half weeks to feel more energy, and so far, one week back on treatment feeling pretty good. I have a brain MRI next Thursday, then a full body PET the following week. This will be my first brain MRI in 3.5 mos and the PET will be the 1st since starting Methotrexate/Cytoxan last January, yep 6 months ago. We had anecdotal evidence that it was working but didn't scan bc we knew we didn't have treatment options left. But now that Pertuzumab is on the market, we'll have at least one option to turn to, if needed. But keeping fingers crossed that Methotrexate/Cytoxan continue to work for a long, long time. Thanks for checking one me~ Always keeping the faith! Jessica