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dchips1 · 06-15-2012, 08:09 AM

I have been on tykerb and herceptin only since March 2010. Never have taken xeloda. My 2 cents is go with the MRI of brain. I have real bad sinus issues and just thought headache was from that. I followed my gut and it was brain mets. I go by the theory of if you have a known, then you can deal with it versus not knowing and worrying all the time. The smaller and faster that you chase the mets then the less invasive treatments are. It is always your choice. The goal is changing this beast into a chronic condition, that it is there, but it does not Dominate your life. I have used Citrucel pills, to help regulate, my bowels. It actually helps when used consistently.

Prayers and Hugs out to you and your family
Darita

06-15-2012, 08:09 AM	#31
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: Dizziness Question I have been on tykerb and herceptin only since March 2010. Never have taken xeloda. My 2 cents is go with the MRI of brain. I have real bad sinus issues and just thought headache was from that. I followed my gut and it was brain mets. I go by the theory of if you have a known, then you can deal with it versus not knowing and worrying all the time. The smaller and faster that you chase the mets then the less invasive treatments are. It is always your choice. The goal is changing this beast into a chronic condition, that it is there, but it does not Dominate your life. I have used Citrucel pills, to help regulate, my bowels. It actually helps when used consistently. Prayers and Hugs out to you and your family Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.