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Old 06-11-2012, 06:29 PM   #3
Laurel
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Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
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Re: Myelodysplastic Syndrome - Robin Roberts...now I'm feeling nervous

Well, Jessica, I'd be a liar if I did not say my heart is beating pretty fast on this one. In general it is a risk we chemo crowd know is "out there" in the stratosphere, but really, how often do we hear of anyone facing it? Yet here is Robin Roberts, whom I frequently catch in the mornings and am fond of as a fellow survivor, facing this hurdle. I was thinking just last week that her being Triple Neg and 5 years out means she has essentially beat the beast. Three cheers for her! Well. What did I know. Now I fall back and do what I did when I first heard of her diagnosis...I'll pray for her.....And that is what I am prepared to do for you.

Jessica, I can feel the fear behind your urgent post. It is nearly palpable and I do not blame you one bit. Still, 10 years of chemo is enough to weary your marrow and it CAN be just that--marrow that needs a protracted break to stabilize. Remember in this cancer terrain we traverse HOPE is our lifeline, our one indulgence that allows us to cope, to hold on, to fight. I want you to hope, to believe you are not being given yet another obstacle to clamber over. This is not your cup to drink is my feeling.

I hope this spurs you to HOPE in your future! I will be watching to see what your Onc has to say on Thursday, please post an update.

Laurel
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Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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