HER2 Support Group Forums - View Single Post - FDA news release on pertuzumab approval (perjeta)

dchips1 · 06-11-2012, 10:48 AM

after reading the Physcians prescribing info about the way it is prescribed. Makes me think back the way tykerb was first prescribed. That you had to take xeloda with it. OOPS My doc and I decided to "Refuse " xeloda, and my insurance has been paying for Tykerb ever since. I do not have any mets other than what is in my spine at this time, But I think I want Perjeta anyway because the Her2 cancer cells are always hiding somewhere. I would like a shot at TDM-1 as well.
so the moral of the story is..... can it be prescribed and then opt out of the "chemo" portion, once it becomes available?
Or if you have been on Herceptin for 6.5 years, are we sitting on the sidelines again? Wandering thoughts from Arizona

Darita

06-11-2012, 10:48 AM	#5
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: FDA news release on pertuzumab approval (perjeta) after reading the Physcians prescribing info about the way it is prescribed. Makes me think back the way tykerb was first prescribed. That you had to take xeloda with it. OOPS My doc and I decided to "Refuse " xeloda, and my insurance has been paying for Tykerb ever since. I do not have any mets other than what is in my spine at this time, But I think I want Perjeta anyway because the Her2 cancer cells are always hiding somewhere. I would like a shot at TDM-1 as well. so the moral of the story is..... can it be prescribed and then opt out of the "chemo" portion, once it becomes available? Or if you have been on Herceptin for 6.5 years, are we sitting on the sidelines again? Wandering thoughts from Arizona Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.