Lani is, as far as I can tell, a fellow Her2 breast cancer survivor who's knowledgeable of the biomedical field. She's well connected with other scientists/researchers and she has been generously sharing her time/effort with us since at least mid 2005.
There's no reason why anyone needs to share anything more than they've already had. The truth is, we don't even know if half of our fellow survivors are using their real names/telling real stories/... Not to mention there are spammers hanging around everyday!
From the 'Members List', we can figure out when a member first joined this group. We can locate all the previous postings using the 'Search' fuction. (Many members deleted their personal information a year or two ago out of the concern of spammers/invaders/Phishers...) Most of us have introduced ourselves when we first joined the group. But some didn't bother with it. Many of us have shared detailed personal/medical information during discussion, but some chose not to do so. Just as I appreciate others' being tolerant to all the personal stories/opinions I've shared (and/or 'forced upon others'
, I respect members' choice of privacy.
In the Cyber space, anyone can paint a totally different picture of himself/herself. The purpose/function of this group is to share information/support among fellow survivors/their loved ones/supporters/... Let's continue to use our 'imagination' to paint a picture/write a biography/tell a story ... of our fellow survivors on this board...
(Just my two cents...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe