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Old 05-01-2012, 05:56 PM   #29
CoolBreeze
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Join Date: Dec 2009
Posts: 562
Re: Is it possible to be cured?

Of course there is a cure to breast cancer. Otherwise, everybody would die from it, and that is far from the truth.

The only problem is because cancer can be so indolent, coming back many years later, we don't know who is cured and who isn't. That's why we have the term NED.

There are clues. ER+ HER- tumors have the five year "magic number" where their relapse rates drop. For HER2+, or Triple Negative, because ours is more aggressive, it's 3 years and then our relapse odds drop.

But cancer is sneaky and you just never know if you are cured until you die of something else, as they say. Because, odds are only that and sometimes it will return. After many years it's incredibly rare - but it CAN happen.

I think how you look at it is part of your personality. Some people are very cautious and are not going to declare themselves cured, even 20 years past cancer. Some people might hit that magic number, give themselves a party and call it a day and themselves cured. Neither attitude or way of dealing with it is right or wrong; it's just the way people manage within their personalities.

Unless you are Stage IV, your cancer treatment will end and eventually you won't be treated by an oncologist. After a time, even your insurance rates can go back to normal! That is a good thing and should be celebrated!

It is only those of us who are Stage IV who are in treatment forever.

Whether you want to look at yourself as cured or whether you want to look at yourself as NED, either one is a fantastic thing and I hope you can enjoy it, and I hope you have a long, happy, cancer-free life.
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08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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