HER2 Support Group Forums - View Single Post

MJsHusband · 05-01-2012, 08:59 AM

The responses I've received have been pretty positive for adding Herceptin back in the regimen with Tykerb and Xeloda. I discussed it with MJ last night and we are going to have it added back in June after the results of her Pet/CT scans.

I mentioned to MJ that many on here feel she should be getting scans every 3 months instead of 6. She's pushing back on that idea for now. She doesn't want to experience scanxiety that frequently. Of course I can't make her.

Are there any studies showing that finding something 1-3 months earlier makes a big difference in overall survivability? I know most of the articles I read about for new treatments make a big deal about adding 3 months to disease-free survival/progression-free survival, but not as much about overall survivability, which is the most important area to increase in my opinion (although I know it is the hardest to extend). I am new to all this but keep reading and learning so that I can be as helpful as I can. I'm having to learn all these new terms and concepts.

Again, thanks for the invaluable comments that everyone has posted. Every one of them has been helpful. And thanks for the congratulations comments concerning our wedding in Jamaica. It was amazing and so glad that we were able to go there and get married on the beach at this crazy point in our lives.

~Greg

05-01-2012, 08:59 AM	#23
MJsHusband Senior Member Join Date: Apr 2012 Posts: 87	Re: Treatment Question The responses I've received have been pretty positive for adding Herceptin back in the regimen with Tykerb and Xeloda. I discussed it with MJ last night and we are going to have it added back in June after the results of her Pet/CT scans. I mentioned to MJ that many on here feel she should be getting scans every 3 months instead of 6. She's pushing back on that idea for now. She doesn't want to experience scanxiety that frequently. Of course I can't make her. Are there any studies showing that finding something 1-3 months earlier makes a big difference in overall survivability? I know most of the articles I read about for new treatments make a big deal about adding 3 months to disease-free survival/progression-free survival, but not as much about overall survivability, which is the most important area to increase in my opinion (although I know it is the hardest to extend). I am new to all this but keep reading and learning so that I can be as helpful as I can. I'm having to learn all these new terms and concepts. Again, thanks for the invaluable comments that everyone has posted. Every one of them has been helpful. And thanks for the congratulations comments concerning our wedding in Jamaica. It was amazing and so glad that we were able to go there and get married on the beach at this crazy point in our lives. ~Greg __________________ 08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43. 08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx [10/10 ~ Scans show liver lesions are gone. NED! 11/10 ~ Ended chemo. Herceptin-only tx 01/11 ~ Mastectomy 03/11 ~ Radiation 07/11 ~ Reconstructive surgery 10/11 ~ PET/CT shows NED :) 01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c 02/12 ~Hysterectomy(all tumors removed). Back to NED. 02/12 ~ Final Herceptin treatment. 03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer. 03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx. 03/12 ~ CT scan shows NED. :) 04/12/~ Began Tykerb/Xeloda. 06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED. 09/12 ~ PET/CT scans show NED. : ) 04/13 ~ Rash on original breast biopsied as cancer. 05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb. 06/13 ~ PET/CT scans show NED : ) 11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx. 02/14 ~ CT scan shows NED. :)