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Old 04-29-2012, 07:04 PM   #12
phil
Senior Member
 
Join Date: Nov 2010
Posts: 393
Re: Treatment Question

Tykerb xeloda is a standard tx for metastatic Her2 , my wife was on it twice, hard s/e . gave her about 6 months remission at one pt. Never did have it w/ herceptin. Probably a good idea to add it. That missed pet / ct is something to ask doc about , how could apet miss cancer in lower pelvis ? Either it grew real fast or the scans werent properly done. pets are very exact, looking for hot spots , cancer cells up-taking sugar, ( thts how i understand it. ) I put alot of faith in pet , plus new tumor marker blood tests. i like to ask doc what theyre thinking of in future , so , if needed , i already know a little about them. I would want scans very 3 months at least . We went on to various combos that didnt work after tyk/xel. carbo, w/ herc think, then abraxane/ avstin , etc. Some pts get a better run from tyk/xel. than we did.
finally got tdm-1 , which is the bomb for pts who strongly overexpress the her2 protein. Ask about it, it has great effect, w/ fewer s/e than other chemos. my wife is 18 months w/ steadily decreasing tumors , and no detectable cancer last 6 months , after being in constant tx , Stage IV for previous 4 + yrs.
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