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Re: TDM-1 news
Thank you so much about the encouragement.
I have been feeling a bit better and today it may sound anodyne but I sneezed which 3 days ago I had suddenly lost the ability to do because my lung would not expand enough and was afraid it meant progression. So many thing it could have been from a small pulmonary embolism (had all the signs but with platelet at 25 what could they have done anyway) to small lung collapse (could hear some sound nothing can be done) or even a bloated stomach pressing on a lung scar..all are better than prog.. these things than can resort themselves..fed up of being scanned and hospitals so I let nature takes its course..
and I am a bit better already so the plan:
1-So hopefully get my face sorted soon (once my platelets are up)
2-See some really improvement after next TDM1 IV (in my breathing)
3-Camper in the UK for the moment
4-Go to my best friend wedding in Turkey (very ambitious plan)
5-Write a "un"cook book as Jean suggest!! I have been thinking of organising raw meals at the cancer charity close to me.
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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