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Re: OH what to do???
The results from last week were even more promising. They show no more active sites in the spine, the sites in the brain are indistinct, no tumor cells in the spinal tap or blood, and overall it looks like we have turned the corner. The radiation at Christmas had similar effects on my wife in terms of a sore back and not feeling chipper. Her back is still sore, there is pain in her ankle that is due to the lower back nerve cells (doctor's assessment). They reduced the topotecan to once per week and the navelbine to once every two weeks. The doctors are preparing the MRI results and treatment plan for a paper in a journal, and to get funding for a new large clinical trial. I hate that others are not seeing progress in their treatment. I hope that you see the same success in yours. Please note, under 50 mg Herceptin per week has not seemed to be effective in the cases that I investigated. at 80 mg per dose, the hospital bills this at $US1800 just for the drug.
Let me know how you are doing.
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