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Old 04-07-2012, 06:20 PM   #6
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: Me again..my face is still swollen..hard blood clot

Thank you for the support and Nancy for the explanations and Rich the research.

I have read that 40-80% of cancer patient who had major surgery go on developing blood clot. Preventative measure is usually sufficient to put a stop to that.

I had major surgery in December 2011 I cannot comprehend why preventative measure where not taken.

When I was NED: If I had had a PET scan in 2009 (when I told them I could feel something in my breast again) or if the CT scans of my checks had picked up the local recurrence (remember it never came back in the liver I did private extra treatment i.e. laser) and they had not missed it twice on the CT scans I would still be NED.

The radiologists realised it was there once I discovered supraclavicular nodes growing) and then compared to previous scans to see were this was coming which showed that it had been there for at last 10 months.. initially small 1cm in the mamary gland close to the breast scar.. This could have so been zapped

They refused to give me radiotherapy of the breast in 2007 (because they were so sure that it would be back in the liver)

When I came to see them with an increased node in supra clavicular nodes in 2010 I was sent home and told come back if it grows.

I have been busy fighting but I I think it is time to sue my hospital for having made me suffer so much having taken away every chances to fight against it and simply doing (far more expensive) crisis management.
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama

Last edited by fullofbeans; 04-07-2012 at 06:37 PM..
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