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Old 04-04-2012, 08:03 PM   #3
NanaJoni
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Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: Tool

Mimi - I meant to add something about the 'ground glass opacity' you have in your x-rays. Has anyone mentioned something called radiation pneumonitis to you? I had bacterial pneumonia about a year ago but didn't get much better after the antibiotics cleared up the bacterial infection. Went back into the hospital and had more tests and was finally diagnosed with the pneumonits. It's good to find about it as soon as possible because if it goes as far as radiation fibrosis, the outcome is much worse. Am taking a very low dose of prednisone every other day now which keeps things under control. I did have to see a pulmonologist to get it diagnosed and treated. Don't let this go if you have other symptoms like shortness of breath, fatigue or other pneumonia-like problems.
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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