View Single Post
Old 03-26-2012, 02:02 PM   #3
yanyan
Senior Member
 
Join Date: Apr 2011
Posts: 403
Re: After living with bone mets, are skin mets anything to sweat?

Hi Kristin,

Sorry to hear about your worries but glad that you are watching out for yourself. I was just diagnosed with a recurrence. It started on my key hole scar, the bottom. There has always been a red blotch there, sometimes red and sometimes not so noticable while i was on herceptin. I never had a second thought about it. Until one month prior to my scheduled implant exchange surgery, the blotch got redder and my oncologist thought it was chronic inflammation. I watched it for 3 weeks and it got worse. Bigger and redder, from pea size to a dime size.There was also a small nodule close to the blotch. The red blotch became a little bit bumpy. So 3 days prior to my surgery, i rushed to my oncologist office and showed him the nodule. It is not what a typical met looks like but he is unclear of what it is so i was at my surgeons office the same afternoon. He ordered an ultrasound which showed only thickened skin. ANyway he persisted in doing a biopsy and last friday was when i was dx with a recurrence. No treatment plan for me yet as we are still waiting for the full body scan and path report on the receptor status.

Sorry for the lengthy story. I guess what i am trying to say is that you need to have your doctor look at it if you are uncomfortable. It only takes a biopsy. If you still have expanders/implants in, they usually don't do a punch biopsy because of risk of infection. Some people have used Xeloda and tykerb to clear the skin mets. Some had surgeries to remove it.

I hope your bump is B9. It is nice to have one less thing about cancer to worry about. Oh, i read in an older post here that since Skin met is not in your blood they don't show up in the tumor marker test. So really a biopsy is the only way to tell.
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
yanyan is offline   Reply With Quote