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Recurrence confirmed- need help!!
One month after my last herceptin, my breast cancer came back in the same breast. It started with red blotch that got worse in 4 weeks and a tiny lump right underneath skin. Next week I will have a pet scan to be restaged
My questions are
1. Is skin mets on the same breast considered local recurrence or does that bring me to stage 4
2. My skin blotch is the size of a dime. If no cancer found anywhere else, what kind of treatment is usually prescribed? Surgery to remove the skin? And/or more chemo? Sine I just finished radiation 6 months ago, I doubt this will be my treatment.
3. Is local recurrence of this type treated with the big chemo taxotere and carboplatin, or only the targeted therapy drug like herceptin or tykerb? Since my recurrence happened while I was on herceptin, is it still worth using this drug? I have seen people using herceptin to get Ned for recurrence.
I am hoping there is no distant mets. Hats off to my surgeon who insisted on a biopsy despite a negative ultrasound result! I feel better that I took matter in my hands but can't help feeling frustrated and scared as it came back so fast. I wonder how much longer will I be around? Will I get to see my 5 year old grow up?
Thanks for listening!
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1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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