View Single Post
Old 03-08-2012, 11:47 PM   #6
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Just when you think you are getting ahead

Britbee,

I had exactly the same thing happen to me after I finished my radiation therapy!

My oncologist had told me clearly at the beginning that the tumor was not hormone positive, thus I couldn not use hormone therapy. When several docoters (not him) I saw at the end of my chemo/radiation mentioned about starting me on Tamoxifen, I thought they were crazy! (Especially the first one who had told me about it.)

But then I began to wonder why everyone was talking about taking Tamoxifen. So I called the medical oncologist's office and then got a confirmation that I did need to take Tamoxifen as the tumor had a 2 % Er + feature. New research has confirmed that women with low percentage Er+ breast cancer still benefit from taking Tamoxifen.

Later I learned that it's actually good to have the receptors. I guess it's just like Her2+++ breast cancer - it was a bad diagnosis when it did not respond to chemotherapy. But it is a better diagnosis now because there's antidote such as Herceptin/Tykerb/...

Yet I understand your frustration. Just when we think we've done what we are supposed to do, something new is thrown at us again!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
Jackie07 is offline   Reply With Quote