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Joan M · 01-31-2012, 06:31 PM

PBK,

I'm sorry to hear about your and Hema's new worry. Please let her know that she is in my thoughts and I'm praying for her recovery.

Depending on the size of the nodule, the radiation oncologist may be able to administer only one dosage of targeted radiation to the tumor, and therefore avoid whole brain radiation if there are not a lot of tumors large and small scattered about. My brain tumor was considered average sized at 2.6 cm, and both a radiologist and surgeon recommended surgery to remove the tumor and then 5 dosages of targeted radiation (in my case IMRT) to the area only where the tumor had been.

Joan

01-31-2012, 06:31 PM	#3
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: worrisome update PBK, I'm sorry to hear about your and Hema's new worry. Please let her know that she is in my thoughts and I'm praying for her recovery. Depending on the size of the nodule, the radiation oncologist may be able to administer only one dosage of targeted radiation to the tumor, and therefore avoid whole brain radiation if there are not a lot of tumors large and small scattered about. My brain tumor was considered average sized at 2.6 cm, and both a radiologist and surgeon recommended surgery to remove the tumor and then 5 dosages of targeted radiation (in my case IMRT) to the area only where the tumor had been. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!