Being NED plays a big role in my question. I feel like I may get to be NED for years and will return to health. But, I'm definitely not there yet and am not sure I will be in a month. I don't want to give up a great job, yet don't know that I'm ready to return.
My work has to make reasonable accommodation - but it doesn't have to be at the same school site. They can put me at the district office, and I'd hate that. My substitute has been great and says she'll still help me out when I come back but I think she's ready to not do this job anymore. I don't want to work just to work - I want THAT job.
If I didn't have to be there so early it would be easier but I don't hear the alarm I set for 9:00 and I don't hear my husband's phone calls when I ask him to call me and see if I'm awake at 9:30. How I'm supposed to get up at 5:00 is beyond me right now.
Sitting home isn't good for me. I waste my day. I do a lot better in a job.
I do feel comfortable talking to the principal but there really isn't much he can do. It's all HR and bargaining contracts.
My son has been told all his life he needs scholarships, especially if he wants to go to MIT or Cal Tech but of course, we still want to contribute. My husband works for the state so he will have retirement we can live on, if I get that far. We'll have to learn to live frugally but we will be safe from starvation, and fortunately, we'll have healthcare for life. I'm the spendthrift which is what I did with my money. I'll just have to stop and we can manage. My husband takes about $1000.00 of my salary to cover some bills and things and so my disability would be close to that.
I don't know, you all had some great points. It is the after-effects of c-diff getting me down, I'm sure of it. That disease messes with your mind, it really does.
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http://butdoctorihatepink.com
08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative
10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.