HER2 Support Group Forums - View Single Post - Update from me - C-Diff Colitis

CoolBreeze · 01-05-2012, 07:06 PM

I appreciate all suggestions, and thank you Jacqueline. My home health nurse warned me about Candida but I don't have any of the other symptoms. I think the bladder infection isn't an infection but is probably my swollen colon pressing on the bladder. It isn't normal bladder infection symptoms. Lots of pressure and some mild urgency, but no burning and I don't have to go all the time like when you get one.

I think I'm going to try to mix Kafir with fruit in a smoothie. It's time for me to incorporate fruit into my diet, or at least try. I did talk to a dietition when I left the hospital but it was mostly about all the things I couldn't eat - which was pretty much everything.

I'm adding things back now and I'll save dairy for last (except for yogurt, which I guess most professionals think doesn't cause the problems other dairies can)

My newest problem is a toothache. I thought I had burnt the roof of my mouth but it's been over a week and now I have an ache. Obviously, I can't take antibiotics. And, I have a strong fear of the dentist. I figured at Stage IV, the one thing I could give up was the dentist as I might not live long enough to worry about losing teeth. I didn't figure on a toothache since I take care of them. Two years ago I did have a complete cleaning before I started chemo.

Hopefully, some saltwater rinses and extra brushings and flossings will help.

01-05-2012, 07:06 PM	#34
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Update from me - C-Diff Colitis I appreciate all suggestions, and thank you Jacqueline. My home health nurse warned me about Candida but I don't have any of the other symptoms. I think the bladder infection isn't an infection but is probably my swollen colon pressing on the bladder. It isn't normal bladder infection symptoms. Lots of pressure and some mild urgency, but no burning and I don't have to go all the time like when you get one. I think I'm going to try to mix Kafir with fruit in a smoothie. It's time for me to incorporate fruit into my diet, or at least try. I did talk to a dietition when I left the hospital but it was mostly about all the things I couldn't eat - which was pretty much everything. I'm adding things back now and I'll save dairy for last (except for yogurt, which I guess most professionals think doesn't cause the problems other dairies can) My newest problem is a toothache. I thought I had burnt the roof of my mouth but it's been over a week and now I have an ache. Obviously, I can't take antibiotics. And, I have a strong fear of the dentist. I figured at Stage IV, the one thing I could give up was the dentist as I might not live long enough to worry about losing teeth. I didn't figure on a toothache since I take care of them. Two years ago I did have a complete cleaning before I started chemo. Hopefully, some saltwater rinses and extra brushings and flossings will help. __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.