HER2 Support Group Forums - View Single Post - FDA Blocks Life-Saving Cancer Drug Rally

annmask · 12-07-2011, 03:29 PM

I agree that the lack of support from advocacy groups for us stage 4 folks is really upsetting. Their explanation refers to the problem of women in the late 90's being given radical stem cell transplant therapy due to early trial results. As we know now, those poor souls suffered horribly with no benefit regarding survival. The quality of life issue is the opposite here with new targeted therapies that take so long to reach patients. I get so depressed when I read about new exciting research that end with "we hope to get this to patients in 5-10 years." We do not have 5-10 years, and we are not throw always! We matter!

12-07-2011, 03:29 PM	#13
annmask Senior Member Join Date: Sep 2010 Location: New hampshire Posts: 44	Re: FDA Blocks Life-Saving Cancer Drug Rally I agree that the lack of support from advocacy groups for us stage 4 folks is really upsetting. Their explanation refers to the problem of women in the late 90's being given radical stem cell transplant therapy due to early trial results. As we know now, those poor souls suffered horribly with no benefit regarding survival. The quality of life issue is the opposite here with new targeted therapies that take so long to reach patients. I get so depressed when I read about new exciting research that end with "we hope to get this to patients in 5-10 years." We do not have 5-10 years, and we are not throw always! We matter!