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Old 11-21-2011, 05:58 AM   #16
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: crazy request for my oncologist?

I am going to throw you all a curve ball. I did ask for more Herceptin and I did get more (see my signature). However, there was a rationale I had that you will not have.

I started Herceptin late. The trial ended in May 2005 with Herceptin's fantastic results so I started after chemo and rads. My year was up in June 2006 and I had asked my onc if I could continue until the end of September (my 2 year cancerversary) since the first 2 years have the highest rate of recurrence. I would have also had my ooph a year and had been on Arimidex (vs Tamoxifen) a year. Secondly, a European study had come out that Herceptin + Arimidex on Her2+/ER+ metastatic women. This study showed these women had progression free survival for 2 years before chemo had to be added so I figured it would help me too.

Anyway - he said yes but remember, Herceptin with chemo as you had, works better than chemo alone. And I had a story to tell - since I started 4 1/2 months after my last chemo, I ended up close to my 2 year from surgery mark and a land mark European study came out to help my case too. You actually are better off than I was that you had the first doses of Herceptin with the chemo.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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