HER2 Support Group Forums - View Single Post - Sisters with Mets...should I stop Herceptin?

mamacze · 10-05-2011, 11:06 AM

Hi Ellie and Steph,
Ellie, I have a good feeling for you; may you, and all of the angels on this site; be blessed with a long, lingering dance with NED.
Do I feel any difference now that I have been off Herceptin for 4 months? StephN said it: ENERGY, energy, energy! Kicking butt in my mixed martial arts class like it is nobody's business! Stronger nails! And yes, a huge psychological lift that comes with going for days and dare I say even weeks, without thinking about cancer...even once!
What hasn't changed? Joints are still sore....nose still runs non stop (guess that is just a function of age...!)
Love and Hugs,
Kim (from CT)

10-05-2011, 11:06 AM	#46
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 638	Re: Sisters with Mets...should I stop Herceptin? Hi Ellie and Steph, Ellie, I have a good feeling for you; may you, and all of the angels on this site; be blessed with a long, lingering dance with NED. Do I feel any difference now that I have been off Herceptin for 4 months? StephN said it: ENERGY, energy, energy! Kicking butt in my mixed martial arts class like it is nobody's business! Stronger nails! And yes, a huge psychological lift that comes with going for days and dare I say even weeks, without thinking about cancer...even once! What hasn't changed? Joints are still sore....nose still runs non stop (guess that is just a function of age...!) Love and Hugs, Kim (from CT) __________________ 2001 - Stage 0, lumpectomy, radiation, tamoxifen 2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only. 2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle 2011 - Still Herceptin only and NED 2011, June - STOPPED Herceptin and kicked up my heels! 2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable. 2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only Received U of W vaccine clinical "booster" Vaccine 2022 On Herceptin and NED continues - WOOT WOOT!