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Old 09-30-2011, 08:15 AM   #15
norkdo
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Join Date: Jul 2011
Location: ottawa canada
Posts: 367
Re: Need some advice

Tracy
I am a negative, pessimistic, anti-depressant-popping writer and former English teacher, current (not working cos of the treatment) dog walker/trainer.
I have different advice for you, therefore, than all the well-adjusted folk above!!!
Here is my advice:
Go into the dark side.
More.
Stop apologizing for your behaviour if you are doing that.

Even Jesus had his screaming fit in the temple. God knows how long it lasted. Could have been months or years right?

Tell strangers who do casual brutalities to you (nurses, hospital employees etc) EXACTLY what they are doing to you, and describe to them the consequences of their actions on you emotionally.

Cancer is your moment. It has been mine.

Finally, the pollyannas who tell you to get therapy (what, with some twenty-five year old psych grad right out of Privilege School who has no wisdom, but treats you as per some model in a psych book written by some self aggrandizing egomaniac?) are well meaning but not necessarily right.

No. I still take a base dose (should increase it, eh? lol) of antidepressants.

But now when the "rain" starts to fall, I burst out in angry tears and to hell with people who don't like it.

(because some airhead idiot screwed up a message from my oncologist and added hours of my phoning the hospital to only get lost in a never-ending phone-tree maze, trying to find out if I should just show up or do I need to get an appointment again, or whatever),

or when the "couldn't give a crap I have a great salary and a union" chemo nurse forgets to phone the pharmacy to deliver my drugs, thereby adding two hours to my five hour herceptin/taxotere infusion last friday.....

I really tell people exactly what I think of them.

I let the world wait.

I let the embarrassment factor go to hell.

I tell people whose idiocy, incompetence, smugness, and ridiculousness have cost me time, patience, or any other negative emotion.

I no longer protect the weak from my temper.

I no longer give a crap about "reforming" my incalcitrant temper.

I am no longer in the business of keeping the crap part of the world free of knowing its effect on me and others.
I have cancer. You have cancer.

Nothing about cancer gets better. Until you finish treatment, reconstruction, etc. and a year has gone by and no disease has spread further, the news is always somehow getting worse. But HER2 means you add a whole year to that schedule for herceptin. Ugly is years long.

I recognized myself in your description of yourself early on when you got the news as "whatever". I too had that feeling.

Let your rage shine, girl.

Don't try to stifle it.

Don't try to stuff it up, medicate it, fix it, therapize it with some young idiot telling you stuff you already know, and then asking you for $150 for that pap. (as i did.)

Shout it from the rooftops, honey: I have the worst frickin thing a woman could have: the heart of my beauty, the intimate part of my sex life, the most delicate relationship I ever had was with my breasts. Now they are butchered. My chest is a war zone of port installation, ugly lumps around my incision, I will never have back the beauty and intimacy that I had because of my breasts. I was a beautiful girl! I had gorgeous, sensitive boobs, and huge, huge hair! I am now an ugly, fattish, bald crone out of Macbeth!
All is lost.

All is crap.
Nobody cares because they have all found answers for themselves. They think their answers are mine. They are nice to offer that advice cos they think it will help.
Maybe one day it will.
But I am looking to install a punching bag on the curb outside my house so I can draw police attention to the one- breasted, bald, screaming, shouting, angry 51 year old woman punching away at the unfairness of it all.
That is how I feel.
Let the cops come about the noise you create.
Let people try to shut you up.
But don't stop screaming, girl.
Do not stop.
If you decide to, that is your business.
But you don't have to. Just shout. Just cry. Just spill those angry tears til you no longer need to. And then get up next day and start over, hon.
You deserve it.
__________________
fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011

mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.


I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
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