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NanaJoni · 09-28-2011, 02:13 PM

Myra - my cousin has this autoimmune disease. She was diagnosed several years ago and has been treated with steroids (prednisone) for flares and eruptions. She has long periods where there is no activity and then may have months of problems with it. Stress is one of the main triggers, as is true with many autoimmune diseases, but she also seems to have flares with no real reason. We have lots of immune problems in our family (lupus, gluten allergies, rheumatoid arthritis, etc). Sadly, it's one of those things you have to deal with over the long haul with no real "cure". Hope you feel better soon and get this under control.

09-28-2011, 02:13 PM	#5
NanaJoni Senior Member Join Date: May 2010 Location: Elizabethton, TN Posts: 418	Re: Anyone know about bullous pemphigoid? Myra - my cousin has this autoimmune disease. She was diagnosed several years ago and has been treated with steroids (prednisone) for flares and eruptions. She has long periods where there is no activity and then may have months of problems with it. Stress is one of the main triggers, as is true with many autoimmune diseases, but she also seems to have flares with no real reason. We have lots of immune problems in our family (lupus, gluten allergies, rheumatoid arthritis, etc). Sadly, it's one of those things you have to deal with over the long haul with no real "cure". Hope you feel better soon and get this under control. __________________ Joni -64 yrs old - 3/01/10: found lump in rt.breast 3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated 3/24/10:sent.node biopsy clear 3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side 4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides 5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo 07/2010: port not working-2nd port didnt'work;3rd port opposite side. 07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin 08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont. 12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks 4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc. 5/2011 - NED!!! port out. 8/2011 - clean PET & CT scans.Still NED 7/2012 - Still NED/very blessed. 2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.