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Old 09-12-2011, 01:35 PM   #14
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: decision time: if you NEVER responded to tyk+herc did you respond to other her2 i

thank you all for your best wishes and suggestion, the german prof say maybe that I can still get them lasered and that the important thing was that there were no new tumours..i do not know how much of what he said was out of kindness (waiting on decisions) Anyhow i am thinking go on navelbine at the same time, i have an appointment next week and will discuss.

Waiting , i can now feel my lungs and i am i have the impression that i am a bit short of breath. I rememebr reading somewhere that the lungs were the biggest organ and that we could live with quite a bit shopped up.

having been at home alone for quite a while know due to my digestive prob and pain in the butt it is all getting so hard to cope with this board reminds you that courage is
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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