[tarynrose]

I am new to all of this so bear with me. I am currentely on Neratinib. I am on month 3 of the trial and I too am looking for someone, anyone who might be on it longer then me. The Diaherra is very bad at times. It can be controlled thur meds and my onc has lowered my dose twice now. I take 160mg a day and right now I am having 3 to 4 episodes a day. I notice all sorts of things being on this trial but diaherra is the most difficult. Let me get set up and we can talk more if you are interested. Like I said I just started on here and have not done my profile or anything yet. I would love to hear from more people on it myself.