HER2 Support Group Forums - View Single Post - ?why Elevated her2 levels? negative scans?

dchips1 · 08-31-2011, 01:50 PM

thanks, I do serum her2 levels, and PET/CT scans. My onc just increased my Tykerb back to 100mg from 750 a day. we had lowered it last year because of the "poop patrol", so now I am changing times for my Bentyl and other probiotics, and other supplements.
I go in 3 weeks and repeat the labs including the HER2. My Neurosurgeon will get to my brain Mri this week, to review it. So we will see. I have been NED since fall of 2006 neck down. My gut says something is hinding in my head somewhere. Onc says wait atill next appt in September and reassess then, rather than adding any chemo at this time.

08-31-2011, 01:50 PM	#3
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: ?why Elevated her2 levels? negative scans? thanks, I do serum her2 levels, and PET/CT scans. My onc just increased my Tykerb back to 100mg from 750 a day. we had lowered it last year because of the "poop patrol", so now I am changing times for my Bentyl and other probiotics, and other supplements. I go in 3 weeks and repeat the labs including the HER2. My Neurosurgeon will get to my brain Mri this week, to review it. So we will see. I have been NED since fall of 2006 neck down. My gut says something is hinding in my head somewhere. Onc says wait atill next appt in September and reassess then, rather than adding any chemo at this time. __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.